One of the missions of the French National Reference Centre for Wilson’s Disease (CNR Wilson) is to monitor the epidemiology of this condition.
If you suffer from Wilson’s disease and are not yet included in the national anonymized register*, then please contact us!
* In order to better understand Wilson’s disease, the National Reference Centre (CNR) has set up a national register that lists all affected patients who are followed in France.
FOR MORE INFORMATION, CLICK HERE.
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The next National Day of the CRMR Wilson disease and other rare diseases linked to the copper will take place on Monday 29 January 2018 at Hôpital Lariboisière from 10h00 to 16h00.
Book of low-copper recipes
Mégane, a 20-year old patient and medical student, has proved she is also a creative cook and excellent photographer! She proposes delicious recipes for everyone: those who are not following a diet and those who suffer from Wilson’s disease and have to try and eat low-copper foods throughout their lives.
23 sweet and 18 savoury dishes to be shared with friends and family. Simple and delicious recipes for guests or for everyday meals…. Mégane has focused on both options.
Proceeds from the sale of this book will go to support research on Wilson’s disease and other heavy-metal diseases.
- To purchase the book, please click here.
Dietary advice – Wilson’s disease
The Dietetics Department at Hôpital Lariboisière in Paris, working in collaboration with the CNR Wilson, has produced a booklet of advice for Wilson’s disease patients on limiting the amount of copper in their diet while still being able to eat healthily. The guidelines in this booklet mean they can produce a range of menus adapted to the condition.