2018

Download the programme of the day

To register, click here

For more information : www.abpmaladiewilson.fr


Download Newsletter N°9


Association Bernard Pepin

Annual Meeting of Patient Organisation : Bernard Pépin for Wilson Disease

Friday 16 march from 14:00 to 16:00am at Hôpital Lariboisière

Patients and their families will be welcomed from 12:30am around a snack.

Download the programme for the day

For more information : www.abpmaladiewilson.fr



National day of the CRMR Wilson

« What multicentre collaborations for tomorrow? »

The next National Day of the CRMR Wilson disease and other rare diseases linked to the copper will take place on Monday 29 January 2018 at Hôpital Lariboisière from 10h00 to 16h00.

Download the programme for the day

Download the proceedings of the day


Download Newsletter N°8


2017

Download Newsletter N°7


Download Newsletter N°6


Download Newsletter N°5


Download Newsletter N°4


Download Newsletter N°3


Annual Meeting of the CNR Wilson

The next Annual Meeting of the CNR Wilson will take place on Friday 23 June 2016
At Hôpital Lariboisière from 10:00 to 16:30.

The morning session will be dedicated to the General Meeting of the French-Speaking Society for the Study of Wilson’s Disease.

Download the programme for the day


The French-Speaking Society for the Study of Wilson’s Disease in collaboration with the French National Centre for Wilson’s Disease presents

The training days

Trace elements and rare diseases: Exemple of the French National Centre for Wilson’s disease

and other rares diseases linked to the copper in France

May, 15/16th, 2017

University Semlalia, Marrakech, Marocco

Download the program


Download Newsletter N°2


Association Bernard Pepin

Annual Meeting of Patient Organisation: Bernard Pépin for Wilson disease

Friday 24 march from 13:00 to 16:00am at l’Hôpital Lariboisière

Patients and their families will be welcomed from 12:30am around a snack.

Download the programme for the day

For more information: www.abpmaladiewilson.fr


Download Newsletter N°1


2016

Awareness meeting on the Wilson’s disease

flyer_conf_maladie_wilson_09-16.indd

Download the programme for the day

Download the invitation letter

Download the reply coupon


Annual Meeting of the CNR WilsonPicto reunion CNR couleur

The next Annual Meeting of the CNR Wilson will take place on Friday 24 June 2016
At Hôpital Lariboisière from 10:00 to 16:30.

The morning session will be dedicated to the General Meeting of the French-Speaking Society for the Study of Wilson’s Disease.

Download the programme for the day

Download the proceedings of the day


2015

The Centres for Rare Iron Disorders and Wilson’s Disease are organising a

National Symposium on Rare Heavy Metal Diseases

on Friday 23 January 2015, in Paris

This symposium on heavy metal diseases is intended for physicians, biologists and paramedical personnel. It will provide an opportunity for an update on rare diseases related to heavy metals. The presence of experts in these different areas will enable debate on the numerous metabolic, clinical, biological and even radiological links between copper, iron, zinc or manganese, etc.

Download the programme and registration form
colloque maladies rares
If you would like more information, please contact: emeline.ruano@aphp.fr


2014

Meeting of the National Reference Centre for Wilson’s Disease
17 June 2014

The next meeting of the National Reference Centre for Wilson’s Disease will take place

on Tuesday 17 June in Paris, from 13:00 to 17:00 at Hôpital Lariboisière.


WILSTIM study

(Approved by the Ethics Committee on 15 January 2014)
If, in the context of your Wilson’s disease, you find it difficult to write (with your right hand), the WILSTIM study may perhaps interest you!
This study is trying to test the efficacy of a new treatment for dystonia of the right hand.

If you would like to take part in this study and obtain more information,
please contact us!

Download details of the study protocol


rare disease day